“I talked with a doctor about this a few years ago for _____- they ended up doing an MRI and found she had cheari malformation- or a blockage of her spinal fluid by her brain. I wondered if it had to do with her vertebral collapse- but they tell me it was non related. Did either of you have crmo issues of the spine?”
I posted about my headaches on my disease facebook page and this woman’s daughter had the same issue. I had a fracture and hotspot in my spine from CRMO a few years back.
I’m posting this for my records.
